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#1 Fri 05 Apr 13 1:05am

abdullahcohn

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From My House
Member since Fri 11 Nov 05

He should be allowed to park there!

http://www.mirror.co.uk/news/uk-news/ge … ay-1812379

You know I wish something would happen that would make it legal for him to park there. How I wish I was allowed to do something to him to make it OK for him to park there.
There are many Disabled people whose benefits have been cut by him who wish that something would happen to him that would make it ok for him to park there.

You know he says that he has only cut benefits to disabled adults, so it is OK because disabled children wont be affected? And they have also said they will look after the most seriously disabled.
That is a lie. We have lost out big time, probably much more than adults and people with minor disabilities.
Off the top of my head this is what we have lost.
They have cut seriously disabled Tax credits by half. The excuse for this was, it isn't fair on adults. Sort of strange when they have cut what adults get with the excuse they wont do it to kids. Cut what all disabled get with the excuse the most serious cases wont be cut?
My council tax has shot up by nearly £500 because central government have reduced what they give local government and have allowed local government to reduce council tax benefit.
If they just increased taxes or council tax, everyone would feel it, everyone would know. So what they did was reduce council tax benefit, so only the poorest feel it and only the poorest would know. Well they have nothing to loss by that, they know the poorest always vote labour anyway. Well all except me, I don't trust any of the lying bastards. Never have, never will.

Reduction in what central government gives local government has also resulted in reduction in services. Some of you lot know from older posts that I get to sleep three nights a week. Well I am always crazy, but before I got my three nights a week my posts were real crazy. They sort of mellowed out after I started sleeping three nights a week. That is because my son needs machines to keep him alive when he sleeps. Machines to breath for him, machines to feed him, sometimes machines to separate oxygen from the air for him and machines to pump in a infusion in to him. There are other machines too, but no room to write them all. In the past I used to look after all these machines all night on my own. Until it got to the stage where I got so tired that I would fall asleep and something would go wrong. I asked our local authority for help. They dragged their feel and social services refused to help because they said because we don't beat our kids there is no chance of them being put in to care and they are the only people they help.
Anyway, one night when the machines alarmed I was so tired I slept through it, and he nearly drowned in his own vomit. We were told it would be best if we ended treatment  and doing so would mean he has 3 days left to live. And I bought a grave, so as soon as he goes we would be ready for him. I called my family to say their final good byes, when they came, my son stood up out of bed when he saw his sister and shouted "you have come to visit me", he seemed so happy, I couldn't go through with it. We changed our minds and demanded treatment continued. After that our local authority started giving us three nights a week of night care, which allowed me to stay up 4 nights a week because I get three nights a week of good sleep. Recently our local authority have stated they intend to end that 3 nights a week recently. So it would be 7 nights awake, and no nights a sleep again.
Not sure how I would manage. But praying that something happens to that filthy hypocritical lying **** to make it legal for him to park in that disabled parking bay will give me strength.
Please God punish him in this life and the next!

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#2 Fri 05 Apr 13 1:35am

abdullahcohn

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Member since Fri 11 Nov 05

Re: He should be allowed to park there!

You know these lying filthy scum bags make it sound like we choose all this as a way of life. No one chooses to become ill and no one chooses illness for their children.
We didn't one day decide, "lets make one of our children disabled so we can live a life full of riches at tax payers expense."
No one chooses that.
My wife went to one of the most respected medical colleges in the world and scored the highest in her graduation year. I studied one of the hardest degrees, well the University I went to was shiit. But the degree wasn't, it was Honours, and I did do very well in it. Hmmmm come to think of it, it was the best out of all the Shiit Universities. you know, what is known as the New Universities, the ones that used to be Polytechnics.
We got married a year after she graduated and when I had just completed my second year. When engineering in this country ended, I did what I was meant to. Retrained as a teacher. I got offered a Job at a local college, they sent the papers for me to sign and send back. But I started at the post before the documents had arrived. Then my son fell ill, well he was always getting ill, but this time it was worse. At that time we didn't know what was happening. It was before diagnoses. So I couldn't go to my post, fill in the forms. I didn't even have time to tell them to hold the Job for me.
No one chooses to be in the state we are in. We didn't choose it. Our Son was born with a condition. It just happened. And we have to look after him. We do what we can to minimise his pain, and discomfort. He has no cognitive disability so understands everything that is happening to him. We just do our best to keep him as happy as possible while he is with us. And we try and do things so he will be able to live as normal a life as possible just encase medical advancements are made and he manages to live in to adulthood and maybe out live us.
It is just upsetting when people have the attitude people choose to be in our situation. Or we are some how privileged.
We are privileged in the DLA we get and the Blue badges that allow us to park in disabled bays. If George Osborne thinks that we are so privileged with our  disabled parking bays and DLA, he should break his own back and claim these rights himself instead of taking it away from us.

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#3 Fri 05 Apr 13 1:42am

abdullahcohn

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Member since Fri 11 Nov 05

Re: He should be allowed to park there!

Oh I got it wrong. He got really ill soon after diagnoses.
That part of my life is a bit of a blur, but It was definitely a few months after diagnoses, so soon after I learned what was going on.
But he was ill loads of times before diagnoses too, but just not as ill.

All the facts are right. I just might have got some of the sequences wrong. When I try and remember the time before three nights a week night care, that chapter all seems really blurry.

I don't know, it is 1 am and I need some sleep. Bye.

Last edited by abdullahcohn (Fri 05 Apr 13 1:59am)

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#4 Fri 05 Apr 13 2:17am

MsPablo

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Member since Fri 28 Mar 08

Re: He should be allowed to park there!

This is when you really wish for karma to be real, but so often, people with power and money walk all over others without suffering any loss or consequences.

It is chilling to hear of the refusals of care and of their petty refusal to give you disabled parking.  I hope socialized medicine never happens here!!!!

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#5 Fri 05 Apr 13 3:56am

abdullahcohn

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Member since Fri 11 Nov 05

Re: He should be allowed to park there!

MsP
If we lived in America we wouldn't need help with looking after him because he would be dead. His condition is vary rare so the drug that stops his very rare form of muscular dystrophy progressing is very expensive. So Insurance companies weasel out of giving it when ever they can. It isn't as bad now that it has received FDA approval. But it still happens. My son was diagnosed before FDA approval. So if we lived there he would have been dead.
Believe me, people with rare conditions like this, wish you had what you call socialised medicine there. There is a reason why almost all countries have that system.

Night care is unconnected to the health service. The health services is national, National Health service. help with looking after a elderly relative, or sick relative or sick child is given by your local authority. It has nothing to do with hospitals or doctors at all. And is paid for by local taxes. such as taxes on the place we live.  London is divided in to 33 local authorities. Local issues are things like rubbish collection, street sweeping, schools etc.

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#6 Fri 05 Apr 13 2:32pm

MsPablo

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Member since Fri 28 Mar 08

Re: He should be allowed to park there!

I'm so sorry Abs.  I shouldn't comment since I don't know how the system works.  I hope you can get some help and a parking permit.  What is the cost to others to allow you to park in a disabled spot?  More yellow paint?

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#7 Mon 08 Apr 13 2:20pm

abdullahcohn

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Re: He should be allowed to park there!

Sorry MrsP. It was my fault for not making myself clearer. What I wrote above was a rant against George Osborne. And the changes he has made to the UK's tax and welfare system. Disabled people are hit the hardest by it. Not just by reductions in welfare but increases in taxes. As well as new rules meaning everyone how ever little they earn now having to pay council tax(our local tax). He has also reduced tax on the highest earners.
The pictures of him parking in disabled bays (he has been pictured doing it more than once) just put all the reductions in benefits for the disabled he has put through in to context.
I think you already know I have loads of respect for you and your husband. And you can comment on what ever you want. I think my style of writing assumed everyone here was from the UK and everyone here knew about the changes that are happening here.

What I wrote wasn't anything to do with UK healthcare. Well the bastards haven't really done what everyone suspects they want to do to that yet.
It was to do with UK care. For example of an old person couldn't dress themselves, feed themselves or go to the toilet any more, local government has an obligation to send someone to help. In the case of children with disabilities it is the Job of their parents, but in some instances like ours, the work load is too much so some help is sent by local government.
Previously we got three nights a week of care, now it has just been reduced to two.
sad

When it comes to the American insurance based healthcare system compared to the systems that exists in the rest of the world. The American system does have its good points. Cancer care is very good in America, and so is research and development of new treatments and new drugs.
But because a lot of these treatments are only available to people who can afford it or people who can afford insurance from companies willing to cover it, such treatments are not available  to the majority of Americans.
In the case of my son. the drug that stops his muscular dystrophy  from progressing was developed in America. And is manufactured by an American company. The scientists that thought of it were from all over the world. But thinking of it is just a thought in the heads of a bunch of people if you don't have a company willing to produce it.
New drugs are expensive because companies need to make back the money they spent on research and development while the drug still has a patent, and drugs for rare illnesses are expensive because it costs pretty much the same if you have a lab that produces 1 kilogram of a drug or 1 tonnes of a drug. Material costs are not much compared to the costs of the lab. When you have a new drug for a rare condition, that means it is very expensive, because patents last for 10 years, and in that 10 years the company needs to pay for all of its R&D and make the biggest profit they can.
American insurance companies are also there to make money. So many of them refused to pay for the drug.
This has meant even though it is an American drug children in the UK with that condition survive, while children in America with it die unless they have rich parents or good insurance.
The thing is, this isn't the UK vs America. It is America vs pretty much the rest of the world. Because even some not so rich countries like Algeria and Malaysia fund it. Kids even get the treatment in India which is a very poor country, because the government there has negotiated with the Drug company to get the treatment for free.
The reason why state funded healthcare works better than insurance based healthcare is companies are there to make money. If it isn't profitable to keep you alive, the company will not keep you alive. And your life is worth more than a companies profit margins.
Another reason is, it is far cheaper. We pay for what we get through our taxes, and so do you. You do pay your insurance premiums too, but even so, the percentage Americans pay for healthcare from their taxes is still far higher than the rest of the world.
This is because when private companies provide the services, as well as paying for the cost of the treatment, you also have to pay for the costs of running the company, and the companies profits. As well as paying for the costs of doctors and nurses you have to pay for the adverts the insurance company makes on TV to try and get new customers.

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#8 Mon 08 Apr 13 2:28pm

abdullahcohn

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Member since Fri 11 Nov 05

Re: He should be allowed to park there!

smile I have a parking permit. We call it a blue badge here.
The issue is, he hasn't.
I have the right to park there, he hasn't.
If he thinks he should have the right to park there. The solution is very simple. He should break his own back. And if he does, I will be very happy. I wouldn't mind at all of he parks there.
I would even volunteer my services to smash his back, legs or any other part of his body he needs smashing to be able to get a blue badge and the right to park in disabled bays.
I am sure a lot of people would volunteer for that. smile

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#9 Mon 08 Apr 13 2:45pm

MsPablo

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Member since Fri 28 Mar 08

Re: He should be allowed to park there!

That is a very good description of the system here.  We are somewhere in-between right now with some states offering 'affordable' coverage for anyone, although that is definitely a relative term costs are still very high.  Uninsured people take their children to the ER in the hospital and they are obliged to treat everyone.  Some hospital systems offer millions of dollars in treatments as charity to those who can't afford it.  Yes, the cost of keeping insurance companies is business is very high.  Our insurance is also the provider of our medical services - one of the largest health groups in the country.  I thought there would be a big conflict of interest, but the care and doctors have been very good and nothing has been held back from us in terms of pro-active health care as well as treatments we needed, but it is wildly expensive every month and then we pay a fee for each service as well.

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